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cherie
 #1 
Ok, so I am actually super scared to even ask this question, but I need to know.
I just had my first baby 6 mo ago before this awful thing started. And in my complete life re evaluation after this started I realized that I DEFINITELY want more babies (maybe 2 more) once I am emotionally more stable and able to handle this.
So of course, I did a search on tinnitus and pregnancy and found a study saying that 62% of women with pre existing tinnitus got worse during pregnancy, but the number of women in tested was only 8, so 5 out of 8 got worse.
So, now of course I am terrified. Dr. Nagler, what do you know about pre existing tinnitus and pregnancy?

DrNagler
 #2 
Cherie posted:

So of course, I did a search on tinnitus and pregnancy and found a study saying that 62% of women with pre existing tinnitus got worse during pregnancy, but the number of women in tested was only 8, so 5 out of 8 got worse.

...........

Please cite the study so we can all take a look at it - and see if it's worth the paper it's written on.

Thanks -

smn
cherie
 #3 
http://www.tinnitussa.org/default.php?http%3A//www.tinnitussa.org/Factsheet8.htm

I read it here.
Cherie

DrNagler
 #4 
Thanks, Cherie.

I wonder what you and anybody else who might care to respond consider to be the strengths and the weaknesses of this study.

smn
DrNagler
 #5 
Bbec posted [in part]:
 
A surgical procedure can correct the hearing loss and may reduce tinnitus awareness in this situation.
 
...........
 
Becca, please re-read the article and tell me what "situation" they are talking about.  Is this for all hearing loss?  Or is it only for one particular type of conductive hearing loss?
 
Also, can anybody tell us who wrote this "fact sheet" and what his or her credentials are?
 
smn


DrNagler
 #6 
The great majority of people with hearing loss have sensorineural hearing loss.  Otosclerosis is but one of the possible causes of conductive hearing loss. 

See - http://www.websitetoolbox.com/tool/post/stringplayer/vpost?id=2994947

Is tinnitus often associated with otosclerosis?  No.  It is occasionally associated with otosclerosis.  That's one of the reasons they do an audiogram.  But while the surgical correction of otosclerosis (an operation called "stapedectomy") often improves hearing, unfortunately most of the time it does nothing to relieve the tinnitus ... and sometimes it can even make the tinnitus worse!

As far as the "fact sheet" goes, it seems to be a publication of the Tinnitus Association of South Australia.  I have no idea who wrote it or what his or her background is.  So even though it sounds authoritative, I take everything in it with a large grain of salt.

I may have to come up with "Stringplayer's Third Law" as a guide for what to believe on the Internet.

smn
cherie
 #7 
Ok, but I still am afraid that getting pregnant will make this worse.
Maccy
 #8 
Cherie,

As you are not planning on having another baby just yet, I would try and concentrate on the positive things (like your new baby) and try to get well yourself. Maybe the tinnitus won't go away but in time you will get to a much better place. Don't focus on what will make it worse (ie: pregnancy,) because thats a negative emotion. I did the same myself and stopped doing an awful lot of things because of T. Having another baby is in the future for you and we really don't know whats around the corner regarding any cures or medications. And you never know really how you will be when pregnant. It might make it go away completely, stranger things have happened!!

Mandy
DrNagler
 #9 
I agree with Mandy.

Plus - I don't see any reason to accept the data from a study that we know nothing about except that the sample is very small and the data are retrospective!  It has little more credibility than a fairy tale.

To the best of my knowledge, pregnancy does not have any long-term effects on the auditory system - so even in the unlikely event that Cherie's tinnitus gets worse during pregnancy, it ought to settle right back down when her hormones do.

smn
cherie
 #10 
I just remember pregnancy being such a physically stressful time... tiredness, nausea, hip and back pain, I could barely walk or leave the house the last 2 months, sleeplessness, waking so many times at night, labor pains etc etc... I can't even imagine going through that all again with tinnitus on top. And I want more babies so much!
Maybe in a year or so (if this hasn't gotten better) I will be used to it and it won't make any difference. I am wondering though, how do you all cope when you get sick? I get headaches sometimes where noises bother me. I wonder what it will be like now with tinnitus. I worry.


mum2four
 #11 
hi cherie

when my second child was 1 yo i got tinntius i also wanted more children so after some time, there is a gap of 4 years between second and third child i decided i would go ahead and 3 years later i had forth child with no great change to tinnitus either time....
DrNagler
 #12 
Cherie posted:

I just remember pregnancy being such a physically stressful time... tiredness, nausea, hip and back pain,

...........

We have two kids.  The youngest is now 18, but I still remember what it was like for my wife during the latter stages of both pregnancies.  So as much as a man can relate ... I can relate.

............

I could barely walk

............

Walking was likely difficult for you,  But I bet you didn't sit in one place for two solid months.  You walked!  You did what you had to do.  So what good does it do to think in terms of "barely" being able to walk!!??  Do you understand what kind of effect that sort of thinking can have upon you physically????

..............

or leave the house the last 2 months,

.............

Same deal.

..........

sleeplessness,

.............

Uh huh.

...............

waking so many times at night,

..............

Yea, like half the men in the world over 60.

...............

labor pains etc etc...

..............

Sort of goes with the territory, no?

...............

I can't even imagine going through that all again with tinnitus on top.

..............

So DON'T!!!!!

I don't wish to be harsh here.  But this sort of thinking is in-and-of-itself making you ill.  And it's completely unnecessary!

smn

DrNagler
 #13 
Bbec posted:

We do not have any control what so ever over what our own subconscious does right?

............

Not exactly.  We have no conscious control over what our own subconscious does.  That's true enough.  But we can influence what our subconscous does all the same.

............

You make it sound very easy to not let tinnitus bother us.

............

Bbec, that's really an unfair statement.  I have repeatedly said that it is not easy, but that it can be done nonetheless.

.............

But you of all people know what it is like.

............

Yes, I do know what it is like. 

And I never thought I could achieve what I have achieved ... until I started achieving it.

The first step, in my opinion, is realizing that you do not need to succeed 100% in order to achieve meaningful lasting relief to your great satisfaction.

smn

 
cherie
 #14 
mum2four, thanks for that info, hearing firsthand that yours didn't get worse helps me feel a little better.
Dr. Nagler, I KNOW I am making myself sick with the way I think. I've been doing that long before I got tinnitus. I'm just so overwhelmed with this. Some days, or half days I feel ok, then it all comes crashing back down on me.
I guess whether I worry about it or not, I WILL have more babies. I guess I'll just have to see what happens when I am pregnant. But for now, I need to just focus on trying to feel better. And maybe someday this will go away. I still have hope.

DrNagler
 #15 
Cherie posted:

But for now, I need to just focus on trying to feel better.

...........

Great!!!

Do you have a plan for how to accomplish that?

smn
cherie
 #16 
Yes, Dr. Nagler, I do. It's not working as fast as I'd hoped though.
Here's my plan:

1) Keep doing more TRT excersizes. I stopped doing them for a few days and that may be why I crashed in the past few days.

2) Contact the TRT therapist again here in France. Find out if therapy is covered, if yes,make an appt.

3)Get out and meet people, get involved, and don't spend so much time home, after I move to Paris next week.

4)Get a CAT scan so my family will stop bugging me about it.

5) Once baby is weaned, try some of the medications suggested by the ENT.

6)Pray, Pray, Pray

7)Realize that I'm going to HAVE to feel better someday, even if this doesn't go away.

8) Go over some of the CBT thinking errors and write down mine and work on changing them.

Anything else I should/could be doing???



DrNagler
 #17 
Cherie posted:

Anything else I should/could be doing???

...........

What is a good plan for one might not be such a good plan for another.  Seems to me that you have designed a mighty good plan for yourself.  Anything I might add would likely screw it up!

smn
Maccy
 #18 
Cherie,

number 7 on your list. YOU WILL. I really beleived that I was never going to come to terms with this and view it in any other way than "Horrible". But I am now so much better than at the begining. Everyone says Time is the best healer and it really is.

Take care
Mandy
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